Friday, November 14, 2008

The bad mom syndrome

I know most of us parents often feel like we're not doing the best job we can, and there even some moments when we feel we're doing a very bad job. I had one of those moments last weekend.

On Saturday evening, we all noticed that Hannah seemed to be dragging a little and we were thinking she was probably coming down with yet another cold/cough. By bedtime, she was coughing and wheezing and didn't look too good. I sent her off to bed thinking she would probably be better by morning. She was very excited to be involved in the children's program at church on Sunday. She had memorized her part, she was brave and ready to talk into the microphone. She woke up around 2 am coughing pretty badly again, but I went in to give her some water and sit with her for a minute, and she was instantly asleep again. But she was even wheezing in her sleep. Well, it can't be that bad if she can sleep, right?

She woke up again less than an hour later still struggling to breathe. I started using all my tricks. Steamy bathroom, rocking in the rocking chair (yes she is pretty big for this, but it's a good way to keep her upright, and yes my legs did fall asleep), she was still having problems, so I even tried the instant croup fix which worked on her as a baby, and on Garrett as a 5 yr. old--I took her outside to the cold night air. Nothing worked. Finally, I held her in my lap as I searched the internet for what might be the problem. She fell asleep again, so I laid her on the couch and I laid next to her. She continued to wheeze in her sleep, but again, she WAS asleep. So again, I thought, it can't be that bad. She wasn't running a fever. So I dozed next to her. She was pretty restless.

At about 6:30 am, I woke up John and made him take my place while I went back to bed to get a little sleep. When I came down about an hour later, she still looked horrible, and she was awake. The first thing she said to me was "I guess I can't be in the program" with such a sad wheezy little voice. So I called our doctor's on call service, hoping to bring her in around 8 or 9 because I knew they had clinic hours on Sundays. The doctor didn't even call me back until 9:30. He asked me two or three questions and then said to take her to the ER. I said, "Shouldn't I just take her to the clinic?" And he said "She needs immediate treatment to help her breathe." So I left the boys with Denise to get ready for church, I picked up John who was already at church for leadership meetings, and we took Hannah to the ER. She fell asleep again.

We didn't have to wait AT ALL at the ER. They took us immediately back and the first thing they did was check her oxygen saturation, and it was 87. If any of you don't know about sats, that is VERY BAD. When I saw that, I just started crying like crazy, hiding my face from Hannah. I can't believe I let her go ALL NIGHT like this. I should have brought her in 10 hours earlier! I collected myself pretty quickly (I like to think), and helped them get a nebulizer mask with oxygen on her. There were a million doctors, nurses, respiratory therapists, and I don't know who else, that came in and listened to her lungs and all of them exclaimed at how bad she sounded. The doctor said it was an extremely severe asthma attack. The nebulizer had albuterol, and then they gave her an oral liquid prednisolone. She wasn't really responding. They said if the couldn't get her a little more stable, they would have to admit her to the ICU. Then she threw up the prednisolone. So they decided to put in an IV, give her the prednisolone through there, and admit her to the ICU. She looked horrible. And scared, and didn't know what was going on.

We finally went to the ICU around 1 pm. She had been on the continuous nebulizer the whole time (except while traveling to the ICU). She looked a little better, but she had so many things sticking out of her. . .the oxygen meter on a finger, the IV in her arm, the blood pressure cuff on the other arm, the mask on her face, and three wires to her chest that measured her heart rate and respiration rate. I wish I had taken a picture, but obviously that was the last thing on my mind. By this time, she was pretty stable, but still obviously needed the continuous treatment. She had that until 6 pm. Eight hours! And then they gave her a ten minute treatment every hour until about midnight. In between, they had her on the oxygen going into her nose, which she HATED. She kept taking it out while I wasn't looking. I hate it too--I always try to refuse oxygen while I'm birthing but they always slip it on while I'm busy. Finally, I asked the nurses to keep it off and see how her oxygen was. They said, "I'm sure she'll need it while she's sleeping." But she didn't, hooray!

On Sunday evening, a bunch of Hannah's friends from church came to visit her, and they even brought presents that would help distract her. She wasn't really ready for reading or coloring, but she was feeling well enough to talk a little and listen to them tell about how the program went, and how they missed her. She had perked up a lot while they were there. After they left, I tried to settle her in to sleep. However, the meds they were giving her made her jittery and sweaty and not sleepy at all. We watched one more movie, then she finally fell asleep. Of course someone was constantly coming in to listen to her breathing, or to give her a treatment, or talk to me about her progress. This was at the rate of about two people per hour until about 1 am, when they changed her status from ICU to "floor status" which meant they could check her less often. So the rate slowed to one person per hour. Obviously, we got little sleep. Hannah is a very light sleeper anyway, so this was pretty horrible. Every time she was awakened, she would ask me questions and was being all chatty. When she finally would get back to sleep, 20 minutes later she was awakened again. Oh what a night! She woke up for good after her 5 am treatment. She was excited to look at her new books and coloring pages.

John took Monday off from work, saw Garrett off to school, took Kevin over to a friend's, then came to the hospital. I went home to sleep. The doctors said Hannah could probably come home that night. They had changed her treatments to every two hours, then to every three hours, then four. They took off all her monitors except the oxygen. They FINALLY took out the IV. Then they said she could come home. I was very nervous that they were handing over her care to me. I don't know anything about asthma, or her medications. But they taught me how to give her an inhaler, and said I didn't need a nebulizer at this point, and maybe this was just an isolated incident and she won't have any more asthma attacks. We can hope.

Anyway, we're home now and Hannah's gone to school. She seems fine, except she still coughs off and on. They said coughing is good though, it gets the phlegm out. Here is a picture of her on Monday morning. She looks great, doesn't she? Of course they had to tape the iv pretty forcefully so she wouldn't keep knocking it out.


If any of you have advice, I would love to hear it. I know I'm not a bad Mom, so don't worry about telling me that. We all just feel like that sometimes.

11 comments:

Doreen said...

Aw, poor baby. And poor mommy. We went through something similar with Tyler not too long ago (though he wasn't quite as bad, and the albuterol worked with just one treatment). His asthma is mostly allergy induced (we don't know which allergies yet), but colds and bad air aggravate it, too. We've only had to use his inhaler a couple of times since we got it. I have to tell you, I did the same thing you did with Hannah. I thought he'd just get better on his own. In fact, I (now) know he's had asthma attacks before, starting probably a year or more ago. I just never know what it was, always thought he was just coming down with a bad cold or something. He always came around, but it would have probably been better for him to have a breathing treatment. I can relate to the bad mom feelings... Glad Hannah's doing better, and now you know how to recognize attacks when they happen and be better prepared.

Pulcheria said...

Wow- poor Hannah and poor you! I definately know what you mean about those "moments." And it really stinks to see so many artificial things sticking out of your kids! I'm glad you are both doing better now.

denedu said...

Wow!!! That must have been really scary! I'm glad she's o.k. now. :) David has really bad asthma. He has had to go to the hospital a couple of times for oxygen treatments, etc. Luckily, since we moved to Logan, he hasn't had any major problems. He just uses his puffer every once in a great while. We're just keeping our eye on the critters to see if they will follow in his footsteps now that we know what to look for. As you know...it's not easy being a parent...and with each child we get a little more lax, I think, with things..."oh, you'll be fine...it's only a scratch", etc. I think it was a normal reaction you had to Hannah's coughing. I'm sure most parents would have done the same thing. And like Doreen said...at least now you know how to recognize attacks when they happen. Glad that she's feeling better. :)

Science Teacher Mommy said...

That is just a bad weekend. I am sure I wouldn't have gone in any sooner to the ER--we did it once in Logan for Padawan's croup and it was a real jump-the-gun call because I didn't know any of the tricks. I guess you'll just know better next time. Sounds like 90% of parenting to me.

Carolyn said...

How scary, but I'm glad she is ok! Dustin's family has asthma really bad, none in mine, so with each child I keep watching and waiting.

kanaboke said...

my nephew's asthma is actually "Winter" induced...whatever that means, but basically my sis-in-law knows his "asthma cough" now and starts treatments right away...maybe that's how it'll be for Hannah.

Erin said...

Wish I had advice to help you, but I have nothing to give other than my support. We love you and we'll keep you in our prayers. I have no doubt you'll educate yourself and be a wonderful caregiver for Hannah. Love you!

Sarah H said...

Wow what a story! I am sooo glad she is okay now! I know it's so hard seeing your child with lots of things poking in them. Not fun. I don't really have any advice, just wish the best for you guys.
that's so sweet the primary class visited her. I miss the ward.

The Kooky Queen--Rachel said...

Oh my goodness! How scary!! I'm so glad she is okay and whatever Lajuanna, you could NEVER be a bad mom! You're amazing!

dana said...

Hi there,
You don't know me but I'm a friend of Sara Paske and you may know my husband, Casey Willard (he hung out with Sara at BYU and lived with Brett Spackman, Devin, etc).

First off, I'm so sorry about your daughter. That is very scary and I'm so glad she's fine! Yes, we've all felt at similar times that we were a bad mom for letting something go too long. But you also don't want to feel like the worrisome mom who hops to the ER when they have a runny nose. So I think you were justified in your actions. :)

Okay, so the reason I'm contacting you (so random like this)...is that there's a slight possibility that Casey could transfer jobs to Naperville. This is all very tentative but I'm doing my homework now so I can make an educated decision when the time comes. Sara says you live there. I just have a few questions about what it's like there (if you can spare a couple minutes to email me back).
I'm from Southern Calif. I've only lived in the snow when I went to BYU. But I think this would just be a short-term 2-3 year move. I have 2 small children.
Do you like living there? What are the wards like? Is there a particular area that's best to live in? (and any other great info you might have...).

Sorry to be a stranger here asking you these things. You can check out my blog so I don't seem so foreign :). (just click on my profile).
And my email is:
danawillard@gmail.com

thanks Lajuana!
- Dana

The Paske Family said...

Oh Lajuana that whole story is so scary. Hannah is such a trooper. One of my nephews has asthma in the summer and also when he is exposed to certain things (he had allergy tests to help determine the "things"). He takes Zyrtec to keep it all at bay. I'm so glad the doctors were able to figure it all out and stabilize it.